Should you ask another woman about a possible lipedema?

You see a woman at the swimming pool, playing sports or in the changing room and immediately think: Could that be lipedema?


Perhaps you recognize her body proportions. Perhaps her legs remind you of your own – even before you knew you had lipedema.

And suddenly you're faced with a difficult question:



Should I say something – or is that none of my business?

"I wish someone had spoken to me about it back then."

Many women only discover late in life that their symptoms could be caused by lipedema. By then, they have often spent years plagued by self-doubt.


Why aren't my legs getting slimmer despite exercising? Why does touch hurt so much? Why do I bruise so easily? Why don't my upper and lower bodies match up?


And most importantly: What am I doing wrong?


The realization that a chronic illness may be behind the symptoms can therefore also be a relief.


This is precisely where the dilemma arises: Perhaps a single clue years earlier would have led to a medical examination.



At the same time, another person's appearance and body remain something very personal.

Is it even possible to see lipedema?

Certain physical characteristics can indicate lipedema. However, a diagnosis cannot be made simply by looking at someone in a swimming pool or gym.


Therefore, the message should never be:


"You have lipedema."


It is much more respectful to talk about your own experience and at most mention the possibility of lipedema.

Ultimately, a diagnosis belongs in the hands of appropriately qualified doctors.


If you say something, do it with tact.

Whether a comment is perceived as helpful or hurtful depends heavily on how and in what situation it is made.


It can be very uncomfortable for a woman to comment on her legs in front of her friends, partner, or other people.


If at all, then always in private.


And instead of judging her body, you can focus on yourself.


For example:

"Please excuse me if this question is too personal. I have lipedema myself and I recognized myself a little bit in what you're saying. If you're not familiar with this topic and sometimes experience discomfort with your legs, I just wanted to let you know. If not, please just disregard what I said."

You are not making a diagnosis or judging her body. You are simply sharing your own experience and leaving it up to her to decide whether she wants to learn more.


Things you'd better not say


Phrases like "Your legs look like lipedema," "You should get checked out," or even "I think you have lipedema" can quickly come across as intrusive. Even well-intentioned advice can be hurtful. Perhaps the woman already knows about her condition. Perhaps she doesn't want to talk about it at all right now. Perhaps there's a completely different reason for her body shape. Or perhaps she's already preoccupied with her body.


A suggestion is an offer – not an obligation to talk.


If you realize that the other person doesn't want to talk about it, you should respect that immediately.


Empathy lies between silence and speaking up.


We believe that one doesn't have to remain silent altogether – but one shouldn't approach every woman in whom one suspects lipedema.

It depends on the moment, the situation, and above all, the how.


Do not diagnose. Do not judge. Do not discuss in front of others.


But – if it truly feels right – share your own experience carefully.

Because sometimes the most respectful way is to say nothing.



And sometimes a single empathetic hint can be the beginning of an answer that a woman may have been searching for for years.